Organization:Canadian Organization for Rare Disorders

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Canadian Organization for Rare Disorders
Canadian Organization for Rare Disorders logo
TypeNon-Profit Registered Charity
Focusrare disorders, rare diseases, and advocacy
Location
  • Suite 600, 151 Bloor St W, Toronto, Ontario, M5S 1S4, Canada
Area served
Canada
Key people
President Durhane Wong-Rieger
Vice President Kirsten Harkins
Treasurer John Adams
Websiteraredisorders.ca

The Canadian Organization for Rare Disorders (CORD) is a Canadian registered charity that is a network of organizations who represent people affected by rare diseases. CORD's purpose is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.[1][2]

Overview

CORD represents the orphan disorders community in the development of Canadian Orphan Drug Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories. CORD is working to ensure Canada's Clinical Trials Registry works effectively for those with rare disorders. CORD is committed to increasing access to genetic screening and genetic counseling for all rare disorders.[1] Currently, Durhane Wong-Rieger is the President of CORD.[3][4]

Their national offices are located in Toronto, Ontario, with an Alberta chapter located in Edmonton, Alberta.[4][5]

See also

  • Rare diseases
  • National Organization for Rare Disorders American based organization
  • European Organization for Rare Diseases
  • Rare Disease Day

References

  1. ↑ 1.0 1.1 "CORD Homepage". http://raredisorders.ca. 
  2. ↑ "Rare Disease Resource Page". http://www.istl.org/07-fall/internet1.html. Retrieved 22 April 2010. 
  3. ↑ "Genetic Alliance advocacy". http://www.geneticalliance.org/organization/canadian-organization-rare-disorders. 
  4. ↑ 4.0 4.1 "About CORD". Archived from the original on 25 July 2010. https://web.archive.org/web/20100725120950/http://raredisorders.ca/aboutUs.html. 
  5. ↑ "Halton Community Service Database". http://search.hipinfo.info/record/BTN4426. 

External links




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