Organization:Texas Neurofibromatosis Foundation
The Texas Neurofibromatosis Foundation, a non-profit organization, was formed in 1980 to battle Neurofibromatosis and to serve the increasing number of men, women, and children in Texas suffering from this disorder.
It was started by a neurofibromatosis (NF) mom, Doris Kraft of Austin, Texas , and an NF doctor of Houston, Dr. Vincent Riccardi. The Texas NF Foundation was headquartered in Austin until 1987, when the main office was moved to Dallas. In 1993 an office was opened in Houston to further the services of the Texas NF Foundation around the state. Since its inception, the Texas NF Foundation has grown rapidly in numbers and scope.
The Foundation is dependent on funds raised by special events, foundations, and individual donations.
Support
- Neurofibromatosis Cafe Home Page of the Neurofibromatosis Cafe website(a non-profit organization working providing patient education, awareness and support of Neurofibromatosis in the United States )
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