YODA Project

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Short description: Project to promote open data in clinical research

The YODA (Yale Open Data Access) Project is a Yale University project to promote open data in clinical research.

The YODA Project has served as a trusted intermediary in a variety of collaborative efforts to make scientific data more broadly available to researchers. It is a response to expanding demands for health information.[1]

The YODA Project is currently partnering with Johnson & Johnson..[2][3][4] SI-BONE is also a partner.[5] Inquiries for data availability for unlisted trials from these data holders can also be submitted.[6]

This project is being examined as a pilot for a new way of sharing information.[7][8]

See also

References

  1. ↑ Taichman, Darren B.; Backus, Joyce; Baethge, Christopher; Bauchner, Howard; de Leeuw, Peter W.; Drazen, Jeffrey M.; Fletcher, John; Frizelle, Frank A. et al. (28 January 2016). "Sharing Clinical Trial Data — A Proposal from the International Committee of Medical Journal Editors". New England Journal of Medicine 374 (4): 384–386. doi:10.1056/NEJMe1515172. ISSN 0028-4793. PMID 26786954. 
  2. ↑ Herper, Matthew (30 January 2014). "In Stunning Win For Open Science, Johnson & Johnson Decides To Release Its Clinical Trial Data To Researchers - Forbes". forbes.com. https://www.forbes.com/sites/matthewherper/2014/01/30/in-stunning-win-for-open-science-johnson-johnson-decides-to-release-its-clinical-trial-data-to-researchers/. 
  3. ↑ Armstrong, Drew (31 January 2014). "J&J Sets Drug Data Free in 'YODA' Collaboration With Yale". bloomberg.com. https://www.bloomberg.com/news/articles/2014-01-30/j-j-sets-drug-data-free-in-yoda-collaboration-with-yale. 
  4. ↑ "Johnson & Johnson Announces Clinical Trial Data Sharing Agreement with Yale School of Medicine | Johnson & Johnson". http://www.jnj.com/news/all/johnson-and-johnson-announces-clinical-trial-data-sharing-agreement-with-yale-school-of-medicine. 
  5. ↑ Hofheinz, Elizabeth. "Yale, SI-BONE Commence Data Transparency Project | Orthopedics This Week". https://ryortho.com/breaking/yale-si-bone-commence-data-transparency-project/. 
  6. ↑ "BioLINCC: Yale University Open Data Access Project (YODA)". National Heart, Lung, and Blood Institute. https://biolincc.nhlbi.nih.gov/studies/yoda/.  This article incorporates text from this source, which is in the public domain.
  7. ↑ Shaikh, Abdul; Mutscher, Gus (4 August 2014). "Innovators in Health Data Series: The Yale Open Data Access (YODA) Project - Health Data Consortium". Health Data Consortium. http://www.healthdataconsortium.org/article_content.asp?article=25. 
  8. ↑ Krumholz, Harlan M.; Ross, Joseph S.; Gross, Cary P.; Emanuel, Ezekiel J.; Hodshon, Beth; Ritchie, Jessica D.; Low, Jeffrey B.; Lehman, Richard (2013). "A Historic Moment for Open Science: The Yale University Open Data Access Project and Medtronic". Annals of Internal Medicine 158 (12): 910–911. doi:10.7326/0003-4819-158-12-201306180-00009. ISSN 0003-4819. PMID 23778908. 

External links

  • Krumholz, Harlan M.; Waldstreicher, Joanne (4 August 2016). "The Yale Open Data Access (YODA) Project — A Mechanism for Data Sharing". New England Journal of Medicine 375 (5): 403–405. doi:10.1056/NEJMp1607342. ISSN 0028-4793. PMID 27518657. 



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