Medicine:Autism spectrum disorders in the media

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Autism spectrum disorders (ASDs) or autism spectrum conditions (ASCs) describe a range of conditions classified as neurodevelopmental disorders in the DSM-5, used by the American Psychiatric Association.[1] As with many neurodivergent people and conditions, the popular image of autistic people and autism itself is often based on inaccurate media representations.[2] Additionally, media about autism may promote pseudoscience such as vaccine denial or facilitated communication.

Since the 1970s, fictional portrayals of people with autism, Asperger syndrome, and other ASCs have become more frequent.[3] Public perception of autism is often based on these fictional portrayals in novels, biographies, movies, and television series. These depictions of autism in media today are often made in a way that brings pity to the public and their concern of the topic, because their viewpoint is never actually shown, leaving the public without knowledge of autism and its diagnosis.[4][5] Portrayals in the media of characters with atypical abilities (for example, the ability to multiply large numbers without a calculator) may be misinterpreted by viewers as accurate portrayals of all autistic people and of autism itself.[6] James McGrath writes that the stereotype of autistic individuals as successful in math and science, along with disliking fiction, is widely overrepresented in literature.[7]

Fiction

Further information: List of autistic fictional characters

Since the 1960s, characters have appeared in film, television, and print that could be qualified as "on the autism spectrum".[3] Characters have been presented as being described as openly autistic in canon, or have been designed with one of many ASCs in mind.[8]

Non-fiction

  • Children of the Stars (2007) is a documentary about children with autism in China. The film examines hardships experienced by parents of children with autism and the lack of international resources for these families.[9]
  • Autism: The Musical (2007) is a documentary about the lives of autistic children and their families, while the children write and rehearse a stage production. The film won several awards, including two Emmy Awards.[10][11] The film centers around The Miracle Project, a nonprofit organization focusing on providing a creative outlet for autistic children.[12]
  • The Horse Boy (2009) is a book and documentary (both released the same year), which follows the Isaacson family on their journey to Mongolia to help their autistic son.
  • Temple Grandin (2010) is a biographical dramatization of the well-known autism advocate Temple Grandin.
  • X+Y (2014) is a film whose protagonist, Nathan Ellis, is based on mathematical genius Daniel Lightwing who has Asperger syndrome.
  • The Big Short (2015) is a film about the 2008 recession which focuses heavily on the hedge fund manager, Michael Burry, who is played by English actor Christian Bale in a leading role. Burry believes himself to be on the autistic spectrum with Asperger syndrome. During the course of the film, this is never revealed but rather it is strongly implied.[13]
  • Chicos de otro planeta (2013) is a documentary about young adults with Aspergers in Chile . The film is narrated by Chilean actor Grex.
  • The Autistic Gardener (2015) is a Channel 4 documentary series in which a team of autistic people redesign people's gardens.[14]
  • Girls with Autism (2015)[15] is a documentary following three girls at Limpsfield Grange,[16] a specialized school in the United Kingdom.
  • The Autistic Buddha (2017) is a non-fiction novel about an autistic individual's journey to Germany and China, and also about what he learned from the experience.[17]
  • The Autistic Brothers (2018) is a non-fiction novel written by a high-functioning autistic individual about his relationship with his low-functioning autistic brother. This book challenges several myths about autism.[18][19]
  • Aspe-chan is a series of strips created by a Japanese twitter handler @akagikuro, that involves a character with this condition and how to understand what the condition is.

MMR vaccine theory

The MMR vaccine was the subject of controversy resulting from publication of a (now retracted) 1998 paper by Andrew Wakefield et al.[20] In 2010, Wakefield's research was found by the General Medical Council to have been "dishonest";[21] the research was declared fraudulent in 2011 by the BMJ.[22]

A March 2007 article in BMC Public Health postulated that media reports on Wakefield's study had "created the misleading impression that the evidence for the link with autism was as substantial as the evidence against".[23] Earlier papers in Communication in Medicine and British Medical Journal concluded that media reports provided a misleading picture of the level of support for Wakefield's theory.[24][25][26]

PRWeek noted that after Wakefield was removed from the general medical register for misconduct in May 2010, 62% of respondents to a poll regarding the MMR controversy stated they did not feel that the media conducted responsible reporting on health issues.[27]

A New England Journal of Medicine article examining the history of antivaccinationists said that opposition to vaccines has existed since the 19th century, but "now the antivaccinationists' media of choice are typically television and the Internet, including its social media outlets, which are used to sway public opinion and distract attention from scientific evidence".[28]

The role of the media in the sensationalization of the MMR vaccination issue was discussed by the BMJ:[29]

The original paper has received so much media attention, with such potential to damage public health, that it is hard to find a parallel in the history of medical science. Many other medical frauds have been exposed, but usually more quickly after publication and on less important health issues.

Concerns were also raised about the role of journalists reporting on scientific theories that they "are hardly in a position to question and comprehend.[30][31] Neil Cameron, a historian who specializes in the history of science, writing for The Montreal Gazette labeled the controversy a "failure of journalism" that resulted in unnecessary deaths, saying that 1) The Lancet should not have published a study based on "statistically meaningless results" from only 12 cases; 2) the anti-vaccination crusade was continued by the satirical Private Eye magazine; and 3) a grapevine of worried parents and "nincompoop" celebrities fueled the widespread fears.[32] The Gazette also reported that:[33]

There is no guarantee that debunking the original study is going to sway all parents. Medical experts are going to have to work hard to try to undo the damage inflicted by what is apparently a rogue medical researcher whose work was inadequately vetted by a top-ranked international journal.

Facilitated communication and rapid prompting

A number books and films exist that promote the scientifically discredited techniques of facilitated communication and rapid prompting as legitimate.

Films

  • Annie's Coming Out
  • Autism Is a World
  • Deej
  • Wretches & Jabberers

Books

  • The Reason I Jump
  • Fall Down 7 Times Get Up 8

Notable individuals

Some notable figures such as American animal handling systems designer and author Temple Grandin,[34] American Pulitzer Prize-winning music critic and author Tim Page,[35][36] and Swedish environmental activist Greta Thunberg are autistic. Thunberg, who in August 2018 started the "School strike for climate" movement, has explained how the "gift" of living with Asperger syndrome helps her "see things from outside the box" when it comes to climate change.[37] In an interview with presenter Nick Robinson on BBC Radio 4's Today, the then-16-year-old activist said that autism helps her see things in "black and white". She went on to say:[38]

It makes me different, and being different is a gift, I would say. It also makes me see things from outside the box. I don't easily fall for lies, I can see through things. I don't think I would be interested in the climate at all, if I had been like everyone else. Many people say that it doesn't matter, you can cheat sometimes. But I can't do that. You can't be a little bit sustainable. Either you're sustainable, or not sustainable. For way too long the politicians and people in power have got away with not doing anything at all to fight the climate crisis and ecological crisis, but we will make sure that they will not get away with it any longer.

Additionally, media speculation of contemporary figures as being on the autism spectrum has become popular in recent times. New York magazine reported some examples, which included that Time (magazine) suggested that Bill Gates is autistic, and that a biographer of Warren Buffett wrote that his prodigious memory and "fascination with numbers" give him "a vaguely autistic aura." The magazine also reported that on Celebrity Rehab, Dr. Drew Pinsky deemed basketball player Dennis Rodman a candidate for an Asperger's diagnosis, and the UCLA specialist consulted "seemed to concur". Nora Ephron criticized these conclusions, writing that popular speculative diagnoses suggest autism is "an epidemic, or else a wildly over-diagnosed thing that there used to be other words for."[39] Thomas Sowell has criticized Time's diagnosis of Gates, saying that the people diagnosing him have not seen him personally.[40] Paul Steinberg has also criticized the literary portrayals of Buffett and Page as autistic, writing these men are able to compensate more completely than a truly autistic child or adult with significant language deficiencies and cognitive deficits.[41]

See also

  • Societal and cultural aspects of autism

References

  1. ↑ "Autism spectrum disorder fact sheet". DSM5.org. American Psychiatric Publishing. 2013. http://www.dsm5.org/Documents/Autism%20Spectrum%20Disorder%20Fact%20Sheet.pdf. 
  2. ↑ Sarrett, J C (June 2011). "Trapped children: popular images of children with autism in the 1960s and 2000s.". Journal of Medical Humanities 32 (2): 141–53. doi:10.1007/s10912-010-9135-z. PMID 21225325. 
  3. ↑ 3.0 3.1 Murray S (2006). "Autism and the contemporary sentimental: fiction and the narrative fascination of the present". Lit Med 25 (1): 24–45. doi:10.1353/lm.2006.0025. PMID 17040083. 
  4. ↑ Holton, Avery; Farrell, Laura; Fudge, Julie (2014). "A threatening Space?: Stigmatization and the framing of Autism in the News". Communication Studies 65 (2): 189. doi:10.1080/10510974.2013.855642. 
  5. ↑ Draaisma D (May 2009). "Stereotypes of autism". Philos. Trans. R. Soc. Lond. B Biol. Sci. 364 (1522): 1475–80. doi:10.1098/rstb.2008.0324. PMID 19528033. 
  6. ↑ Bethune, Brian (3 July 2009). "Autistic licence: suddenly, Asperger's is the new 'it' disorder on screen and in fiction". Macleans.ca. http://www.macleans.ca/2009/07/13/autistic-licence/. 
  7. ↑ McGrath, James. "Not all autistic people are good at maths and science – despite the stereotypes" (in en). https://theconversation.com/not-all-autistic-people-are-good-at-maths-and-science-despite-the-stereotypes-114128. 
  8. ↑ Poulson S (2009). "Autism, through a social lens". Contexts 8 (2): 40–5. doi:10.1525/ctx.2009.8.2.40. 
  9. ↑ Library Journal. (15 April 2009). Video (Reviews). Accessed 9 September 2010.
  10. ↑ [full citation needed] [1][|permanent dead link|dead link}}]
  11. ↑ [full citation needed] The Hollywood Reporter
  12. ↑ Hector Gonzalez. "Autism One 2009 :: The Miracle Project". Old.autismone.org. http://old.autismone.org/?goto=chicago&page=miracleProject. 
  13. ↑ Mallenbaum, Carly (20 December 2015). "'Big Short': 5 things to know about Christian Bale's real-life character". USA Today (McLean, Virginia). https://www.usatoday.com/story/life/entertainthis/2015/12/20/big-short-christian-bale-burry/77669486/. 
  14. ↑ Wednesday’s best TV The Guardian 8 July 2015.
  15. ↑ "Archived copy". https://www.itv.com/itvplayer/girls-with-autism/series-1/episode-1-girls-with-autism. 
  16. ↑ http://www.limpsfieldgrange.co.uk/
  17. ↑ Singer, Angela (12 January 2018). "Thomas plots his journey through life in new book" (in en). http://www.dunmowbroadcast.co.uk/news/thomas-plots-his-journey-through-life-in-new-book-1-5352331. 
  18. ↑ Singer, Angela. "Why you should not ask: Is Jack's autism better now?" (in en). Dunmow Broadcast. https://www.dunmowbroadcast.co.uk/news/thomas-clements-from-great-sampford-writes-a-new-book-called-the-autistic-brothers-1-5830816. 
  19. ↑ Barkley, Cat (26 December 2018). "Chronicles of brotherly love". Bishop’s Stortford Independent. https://edition.pagesuite-professional.co.uk/html5/reader/production/default.aspx?pubname=&edid=0f1133a7-0d69-4b8f-98f1-c09e8f97bfa0. 
  20. ↑ "Ileal-lymphoid-nodular hyperplasia, non-specific colitis, and pervasive developmental disorder in children". Lancet 351 (9103): 637–41. 1998. doi:10.1016/S0140-6736(97)11096-0. PMID 9500320. http://briandeer.com/mmr/lancet-paper.htm. Retrieved 5 September 2007.  (Retracted, see PMID 20137807)
  21. ↑ Boseley, Sarah (28 January 2012). "Andrew Wakefield found 'irresponsible' by GMC over MMR vaccine scare". The Guardian (London). https://www.theguardian.com/society/2010/jan/28/andrew-wakefield-mmr-vaccine. 
  22. ↑ "Wakefield's article linking MMR vaccine and autism was fraudulent". BMJ 342: c7452. 2011. doi:10.1136/bmj.c7452. PMID 21209060. http://www.bmj.com/content/342/bmj.c7452.full. 
  23. ↑ "Parents' champions vs. vested interests: who do parents believe about MMR? A qualitative study". BMC Public Health 7: 42. 2007. doi:10.1186/1471-2458-7-42. PMID 17391507. 
  24. ↑ "Journalists and jabs: media coverage of the MMR vaccine". Commun Med 1 (2): 171–81. 2004. doi:10.1515/come.2004.1.2.171. PMID 16808699. 
  25. ↑ Jackson, Trevor, "MMR: more scrutiny, please." British Medical Journal, 326.7401 (7 June 2003): p1272(1).
  26. ↑ Dobson Roger (May 2003). "Media misled the public over the MMR vaccine, study says". BMJ 326 (7399): 1107. doi:10.1136/bmj.326.7399.1107-a. PMID 12763972. 
  27. ↑ "Reputation Survey: MMR panic subsides." PR Week, 2 June 2010: 24.
  28. ↑ "The Age-Old Struggle against the Antivaccinationists". N Engl J Med 364 (2): 97–9. 13 January 2011. doi:10.1056/NEJMp1010594. PMID 21226573. 
  29. ↑ Goldee, F (January 2011). "The fraud behind the MMR scare". British Medical Journal 342: d22. doi:10.1136/bmj.d22. 
  30. ↑ "Link between MMR Vaccines and Autism conclusively broken". IB Times. 7 January 2011. http://www.ibtimes.com/articles/98531/20110107/link-between-mmr-vaccines-and-autism-conclusively-broken.htm. 
  31. ↑ Broyd, Nicky (6 January 2011). "BMJ Declares Vaccine-Autism Study 'an Elaborate Fraud', 1998 Lancet Study Not Bad Science but Deliberate Fraud, Claims Journal". WebMD Health News. http://www.webmd.com/brain/autism/news/20110106/bmj-declares-vaccine-autism-study-fraud. 
  32. ↑ Cameron, Neil (12 January 2011). "Autism 'study' represents a failure of journalism". The Montreal Gazette. http://www2.canada.com/montrealgazette/news/editorial/story.html?id=def2fb05-916e-454c-9294-099cfb62e880. 
  33. ↑ "False autism study has done untold harm". The Montreal Gazette. 10 January 2011. http://www2.canada.com/montrealgazette/news/editorial/story.html?id=bfa71aff-847e-4481-8f26-f4fd0bc3e35c. 
  34. ↑ Zwerdling, Daniel (April 2002). "Kill Them With Kindness". American RadioWorks. http://americanradioworks.publicradio.org/features/mcdonalds/grandin1.html. 
  35. ↑ Page, Tim (20 August 2007). "Parallel Play: A lifetime of restless isolation explained". New Yorker (New York, N.Y. : 1925) (The New Yorker): 36–41. PMID 17710777. https://www.newyorker.com/reporting/2007/08/20/070820fa_fact_page?printable=true. Retrieved 8 November 2007. 
  36. ↑ "Pulitzer-Winner on Living with Asperger's: All Things Considered". NPR. 13 August 2007. https://www.npr.org/templates/story/story.php?storyId=12750745. 
  37. ↑ Ian Birrell (23 April 2019). "Greta Thunberg teaches us about autism as much as climate change" (in en). Guardian. https://www.theguardian.com/commentisfree/2019/apr/23/greta-thunberg-autism. 
  38. ↑ O'Malley, Katie (23 April 2019). "Greta Thunberg says 'gift' of Asperger's Syndrome helps her see through 'lies'" (in en). The Independent. https://www.independent.co.uk/life-style/health-and-families/greta-thunberg-gift-asperger-syndrome-environment-strike-climate-change-radio-4-a8883056.html. 
  39. ↑ Wallace, Benjamin. "Autism Spectrum: Are You On It?". NYMag.com. https://nymag.com/news/features/autism-spectrum-2012-11/. 
  40. ↑ Sowell, Thomas (2001). The Einstein Syndrome : bright children who talk late. New York: Basic Books. pp. 142, 189. ISBN 9780465081417. https://archive.org/details/einsteinsyndrome00sowe. Retrieved 3 May 2016. 
  41. ↑ Steinberg, Paul (31 January 2012). "Asperger's History of Overdiagnosis". The New York Times. https://www.nytimes.com/2012/02/01/opinion/aspergers-history-of-over-diagnosis.html?scp=1&sq=asperger&st=cse. 

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